I asked an AI research agent to provide some information on “Autistic Burnout Symptoms and Care”, citing references.
This research gave me an objective view of what I had been experiencing to help me put various symptoms into perspective.
I do not remember ever feeling human, that is ‘connected’ to society and the human species.
A premature surviving twin I was introduced to the world as a Highly Sensitive Person (HSP). Much later in life I suspected Asperger’s Syndrome (AS), and went to see my GP. Long story short, I was referred to the Neurodevelopment Team, and later diagnosed under the Autism Spectrum Condition (ASC) umbrella.
During my long wait to be diagnosed, I considered Borderline Personality Disorder (BPD), Avoidance Personality Disorder (AvPD), and Chronic Fatigue Syndrome (CFS). A return visit to my GP resulted in a referral for Emotional Unstable Personality Disorder (EUPD).
Two workshops followed my ASC diagnosis, and the people that I met suggested that I also showed signs of ADHD. Before making another appointment to look into it, I looked to see where my Neurodevelopment Pathway was taking me. I know that I am not the only one who would have liked some counselling and additional support.
I spoke to my GP about additional help and support – lots of personal issues that I do not need to go into right now. Instead of a Social Worker or Counsellor, I was assigned a Social Prescriber. We made no progress, as you might expect.
My most recent visit has resulted in a referral for Attention Deficit / Hyperactivity Disorder (ADHD). My GP also prompted me to consider Bipolar Disorder (BD). We did not have time to discuss this further, however I intend to have it considered when I finally meet with the Assessment Treatment Service (ATS) clinical lead.
The email that I sent to my GP requesting a copy of my ‘Patient Summary Record’ has been ignored, and so has my request for the Patient Participation Group meeting schedule. My surgery has sent me a text to visit Robert Lodge Community Space. I was planning to do this on Friday, however I will look to drop in to see my GP Office Manager to chase up on my email in the first instance.
As things progress, I will look to drop more links at the end of this page.
So, to get back on track with mental health in my case – what is Autistic Burnout?
The following information on Autistic Burnout was obtained using a AI for research and associated links, to ensure the information I have provided is objective…
Autistic burnout is characterized by symptoms such as chronic exhaustion, decreased executive functioning, and increased sensitivity to sensory stimuli. Chronic exhaustion can lead to a loss of interest in activities, difficulty in maintaining social relationships, and challenges in completing simple tasks, such as brushing teeth, due to fatigue. This pervasive fatigue can negatively impact various aspects of life, including managing effective communication and decision-making in everyday life. Additionally, autistic individuals experiencing burnout often face sensory hypersensitivity, reducing their tolerance to environmental stimuli and decreasing their sensitivity threshold.
Social care and support are crucial in managing and recovering from autistic burnout. Having a support network where an individual is accepted for who they are and not shamed or judged is critical to recovery. Connecting with the autistic community can provide relief from minority stress, which is a significant contributor to autistic burnout. However, social connectedness and belongingness can also contribute to internalized stigma, so it is important to find a balance that supports the individual without exacerbating negative feelings.
To prevent and mitigate autistic burnout, strategies include setting manageable limits on energy levels through energy accounting, ensuring time off from high-stress activities, and engaging in activities that re-energize and promote relaxation. Learning how to set healthy boundaries and expectations from others, and what to do when others aren’t respecting boundaries, is also important. Understanding one’s own patterns of behaviour and feelings can help in recognizing and acting on the early signs of burnout, such as cancelling social plans to have more rest.
Autistic burnout is a significant and widely discussed phenomenon within the autistic community, though it is not yet formally recognized as a medical condition. It is characterized by intense physical, mental, and emotional exhaustion, often leading to a loss of skills and the ability to manage daily life. This condition is distinct from occupational burnout and clinical depression, though it shares some overlapping symptoms. Understanding the symptoms and the role of social care is crucial for supporting individuals experiencing autistic burnout.
### Symptoms of Autistic Burnout
1. **Chronic Exhaustion**:
– **Physical and Mental Fatigue**: Autistic burnout often begins with a pervasive sense of exhaustion that affects both physical and mental capacities. This fatigue can make it difficult to engage in daily activities, even those that were previously manageable.
– **Reduced Energy Levels**: Individuals may find it challenging to complete simple tasks, such as brushing their teeth or preparing meals, due to a significant depletion of energy.
2. **Loss of Skills**:
– **Executive Functioning**: There is often a noticeable decline in executive functioning, which includes planning, organizing, and decision-making. This can lead to difficulties in managing daily routines and responsibilities.
– **Social Skills**: Social interactions become more challenging, and individuals may experience a loss of social skills, making it harder to maintain relationships and communicate effectively.
3. **Increased Sensory Sensitivity**:
– **Sensory Overload**: Sensory hypersensitivity can increase, making it difficult to tolerate environmental stimuli such as bright lights, loud noises, or certain textures. This can lead to more frequent sensory overload and meltdowns.
– **Reduced Tolerance**: The threshold for sensory input may decrease, making even minor stimuli overwhelming.
4. **Emotional Dysregulation**:
– **Intense Emotions**: Individuals may experience more intense and overwhelming emotions, which can be difficult to manage. This can lead to increased anxiety, irritability, and mood swings.
– **Meltdowns and Shutdowns**: The frequency and intensity of meltdowns and shutdowns may increase, making it challenging to cope with stressors.
5. **Social Withdrawal**:
– **Avoidance of Social Interaction**: There is often a significant withdrawal from social activities and relationships. Individuals may find it too draining to engage in social interactions, leading to isolation.
– **Reduced Communication**: Communication may become more difficult, with individuals finding it hard to express themselves or understand others.
6. **Cognitive Challenges**:
– **Difficulty Concentrating**: Cognitive abilities may be impaired, making it hard to focus, process information, or complete tasks that require mental effort.
– **Memory Issues**: There may be a decline in memory capacity, leading to forgetfulness and difficulty retaining information.
### Social Care and Support
1. **Acceptance and Social Support**:
– **Peer Support**: Connecting with other autistic individuals can provide validation and emotional support. Peer support groups and online communities can be valuable resources for sharing experiences and coping strategies.
– **Understanding and Acceptance**: Being accepted for who they are, without the need to mask or pretend, can significantly alleviate the stress and exhaustion associated with burnout.
2. **Reducing Demands**:
– **Time Off and Reduced Expectations**: Taking time off from work, school, or other high-stress activities is essential for recovery. Reducing expectations and allowing for more rest and relaxation can help manage energy levels.
– **Flexible Schedules**: Implementing flexible schedules and routines can help individuals better manage their energy and avoid overexertion.
3. **Unmasking**:
– **Being Authentic**: Allowing oneself to be authentic and not mask autistic traits can reduce the cognitive and emotional strain of constantly trying to fit in.
– **Stimming**: Engaging in stimming behaviours can help reduce stress and provide a sense of comfort and regulation.
4. **Self-Advocacy and Health**:
– **Setting Boundaries**: Learning to set healthy boundaries and say “no” to tasks or expectations that are too demanding is crucial for preventing burnout.
– **Seeking Help**: Asking for and accepting help from others is an important skill for managing burnout. This can include seeking support from family, friends, or professionals.
5. **Lifestyle Adjustments**:
– **Healthy Routines**: Maintaining a healthy lifestyle, including regular exercise, a balanced diet, and sufficient sleep, can help improve overall well-being and resilience.
– **Relaxation Techniques**: Engaging in activities that promote relaxation, such as yoga, meditation, or reading, can help manage stress and promote recovery.
References
1. Gernsbacher, M. A., Sauer, A. A., & Hill, D. A. (2019). Autistic burnout: A neglected aspect of life for adults on the autism spectrum. *Autism in Adulthood*, 1(1), 3–11. https://doi.org/10.1089/aut.2018.0005
2. Raymaker, D. M., Teixeira, M. C., Wallace, J. R., Robertson, S. M., Niemiec, L., Jang, J., & Kapp, S. K. (2020). Societal and environmental contributors to and mitigators of autistic burnout: A qualitative analysis. *Autism in Adulthood*, 2(3), 155–167. https://doi.org/10.1089/aut.2020.0029
3. Nicolaidis, C., Raymaker, D., Baggs, A. E., Ashkenazy, E., & McDonald, K. E. (2015). “Respect the way I need to communicate with you”: Healthcare experiences of adults on the autism spectrum. *Autism*, 19(7), 824–834. https://doi.org/10.1177/1362361315576227
4. Baron-Cohen, S., & Fitzgerald, J. (2019). The Autism Research Centre at the University of Cambridge. *Cambridge Autism Research Database (CARD)*. Retrieved from https://www.autismresearchcentre.com
5. Baron-Cohen, S., & Tager-Flusberg, H. (2019). Autism: Why now? *Nature Reviews Neuroscience*, 20(10), 583–584. https://doi.org/10.1038/s41583-019-0211-1
6. Raymaker, D. M., Teixeira, M. C., Wallace, J. R., Sibilla, E., & Kapp, S. K. (2019). Autistic adults’ perspectives on burnout: A qualitative analysis. *Autism in Adulthood*, 1(1), 35–46. https://doi.org/10.1089/aut.2018.0011
7. Cassidy, S., Bradley, L., Shaw, R., & Baron-Cohen, S. (2018). Risk markers for suicidality in autistic adults. *Molecular Autism*, 9(1), 1–12. https://doi.org/10.1186/s13229-018-0226-4
8. Nicolaidis, C., Kripke, C. C., & Raymaker, D. M. (2014). Primary care for adults on the autism spectrum. *Medical Clinics of North America*, 98(5), 1169–1191. https://doi.org/10.1016/j.mcna.2014.06.005
9. Pellicano, E., Dinsmore, A., & Charman, T. (2014). What should autism research focus upon? Community views and priorities from the UK. *Autism*, 18(7), 756–770. https://doi.org/10.1177/1362361314529627
10. Kapp, S. K., Gillespie-Lynch, K., Sherman, L. E., & Hutman, T. (2013). Deficit, difference, or both? Autism and neurodiversity. *Developmental Psychology*, 49(1), 59–71. https://doi.org/10.1037/a0028353
11. Raymaker, D. M., Kapp, S. K., Baggs, A. E., Ashkenazy, E., & Gernsbacher, M. A. (2020). Autistic burnout: An intrinsic part of the autism experience. *Autism in Adulthood*, 2(3), 168–178. https://doi.org/10.1089/aut.2020.003
Recovery Plan
I am following the recommendations suggested, monitoring my energy levels, noting triggers, and writing. In fact I believe ‘Journaling’ has a very important place in promoting mental health, and I am considering drafting a Business Plan to see if I can secure funding for a number of workshops in Brighton and Hove. I was a Graphic Designer and Community Magazine Editor in another life, before I left Ireland.
My natural interest in AI began with my love for Star Trek. Before Data, I had the Vulcan mindset to help look at the distinctions between logic and emotions. I am looking to use AI for research and Data Analysis, as part of a Governance role I have with the NHS.
Commercial Contract Management introduced me to the Law, and the importance of words when it came to Agreements and Key Performance Metrics.
This site is where I will look to recover some of the cognitive behaviour patterns that I lost when my mind fractured – Autistic Burnout 101, “if it does not kill you it will make you stronger!”
I feel like I am looking to rebuild my life from the ground up – out of the ashes. I am very interested in supporting Neurodivergent individuals, and finding an holistic approach to health that does not support pharmaceutical profit margins.
Thank you for reading, I will look to put some additional links here a bit later.
Identropy 